Lyme disease....it's everywhere!  - Providing information to help you understand more about Lyme
Thanks for visiting! This is a simple easy to use website for those who may be too sick to surf the internet looking for answers...
 
I'm a patient with Lyme disease sharing what I have learned over the past years. I am not a medical practitioner and do not have medical license. All comments are simply based on my experience or are from my research online only. Consult your medical doctor for all medical decisions. It is suggested that you seek help from a LYME specialist !
 
I hope you can find everything you need. Lyme disease....it's everywhere! is focused on providing information that can assist you in educating yourself about this disease and what to do when faced with trying to find answers to regain your health and well being.
 
There is more to this disease then what is being told to the medical professionals that are faced with sick individuals searching for answers. No one knows what Lyme Disease feels like until they catch it. It's scary....it's horrible....it's expensive! The doctors who know how to treat Lyme are called ' Lyme Literate Medical Doctors' or LLMD. Most of them DO NOT except insurance. The reason being that the insurance companies threaten to revoke their license for treating with long term antibiotics which is most often needed to kill the bacteria attacking your body. There is a lot of politics behind this disease. Rather then try to explain it myself, I have a list of information websites for you to read and most of all....EDUCATE YOURSELF before you get too sick to do so.
 
There is no charge for anything on this webite.
 Once again...I DO NOT claim to be a doctor or an expert on Lyme...I have just done an extensive amount of online research to share with people who need to understand why they feel the way they do and how they may find some much needed answers to questions asked as I did....
Please visit the video section of this website. The videos have powerful information for you. Here is one to start with.
It is an episode from the show called Chronicle  
Click here>  

WHAT IS LYME VIDEO 
posted by The Lyme Action Network
http://www.youtube.com/watch?v=tX70ivbRyJ4&list=PL7A0A2955E436113F&feature=share&index=38

 
 
INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY
 
Lyme Disease Research Database
 
Columbia university Lyme Research
 
Long term Lyme symptoms......IMPORTANT!

Lyme Disease May Be Sexually Transmitted, Study SuggestsInternational team of scientists finds evidence for sexual transmission. REPORT AS OF JAN. 2014
http://www.prweb.com/releases/2014/01/prweb11506441.htm

This site is for the people who do not want to treat the property for ticks with pesticides
 
CanLyme Website with Tick pics
 
Some Of The Many Symptoms of Lyme Disease Are
                                Also...
 
Lyme Disease misdiagnosed as....? A LIST FROM LYMEBOOK.COM
 
**** Interpreting the IgG & IgM Western Blot Test For Lyme Disease  *****
 
THIS IS AN EXTREMELY IMPORTANT VIDEO TO WATCH.
Robert O. Giguere, director of sales for IGeneX, Inc., explains Lyme disease testing at a talk in Fishkill early this month. The Palo Alto, Calif., company uses additional markers for Lyme under which some people test positive who have been negative
 
 
BRING A CHECK LIST WITH YOU TO THE OFFICE!
 
Lyme Disease and Rife Machines INFORMATIONAL WEBSITE
 
Tick Borne Disease Alliance/ Get informed
 
The Poughkeepsie Journal Articles Written by Mary Beth Phieffer
 
 
Poughkeepsie Journal’s Mary Beth Pfeiffer Named Lyme Research Alliance’s First "Person of the Month" for 2013 Nominated for a Pulitzer Prize for her series about Lyme and tick-borne diseases, “No Small Thing,” the most comprehensive treatment of the subject ever undertaken by a newspaper. Says she hadn’t realized that Lyme disease was “such a controversial can of worms.”
 
http://www.poughkeepsiejournal.com/viewart/20130203/OPINION03/302030303/Uproar-over-Lyme-disease-article-changes-medical-journal-s-stanceLyme Disease: Antibiotics fuel debate
5 doctors targeted; chronic treatment at issue
http://pojonews.co/PwQFJd

Lyme disease: Writer has a bout
http://pojonews.co/RtdS4j

Friday Aug. 17
Lyme disease: Dutchess leads nation in cases   
5 local counties in U.S. in the top 10
http://pojonews.co/OqxJfU

Video of Faces of Lyme disease
http://pojonews.co/PwSmGE
 
Here is a list of recommended blood tests and what they can show about your condition:
http://goodbyelyme.com/treatment/blood_tests (This may be helpful to your doctor to determine your condition)
An alternative approach to treat Lyme from a medical site called ENVITA Medical Center of America ( Please note that I do not have any investment or connected to this website being shared)
 
 
Yale researchers discover new tick-borne illness Dated Jan. 2013
 
Three Bills Seek More Guidelines, Study Of Lyme Disease Testing
 
How to File for Lyme-Related Disability Benefits
 

COWDEN SUPPORT PROGRAM
Protocol for Borrelia and Lyme Co-Infections & Most Chronic Conditions
http://www.nutramedix.ec/ns/lyme-protocol

Xenodiagnosis to Detect Borrelia burgdorferiInfection: A First-in-Human Study
http://cid.oxfordjournals.org/content/early/2014/02/10/cid.cit939.abstract?sid=89620502-bc85-44c0-9024-1d56ca149ac6

Decreased CD57 lymphocyte subset in patients with chronic Lyme disease.
http://www.ncbi.nlm.nih.gov/pubmed/11222912

http://www.immed.org/NewsReports/NewsReports03.2010update/PHA_Nicolson_0709_v4_07.pdf

Identification of novel activity against Borrelia burgdorferipersisters using an FDA approved drug library
Emerging Microbes & Infections (2014) 3, e49; Published online 2 July 2014.

http://doi.org/10.1038/emi.2014.53 

This important information is from THIS IS LYME WEBSITE
 http://whatislyme.com/assistance/

Lyme Tap – The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
http://www.lymetap.com/
Lyme Light
Anyone diagnosed with Lyme disease between ages of 3-25 and can demonstrate a qualified financial need.
http://lymelightfoundation.org/
Meal Train
http://www.mealtrain.com/learn/what_is_a_meal_train/
Lyme Roommates
https://www.facebook.com/groups/445692835451476/445968085423951/?notif_t=group_activity
Lymies Seeking Roomates
https://www.facebook.com/groups/471747336171718/
Needy Meds
http://www.needymeds.org/index.htm
Make A Wish
Click on this link to go to “Make a Netwish”, a site to get monies, if you are in need.
http://www.netwish.org/Request_a_Net_Wish.html
Clinic of Angels
Click on this link to go to “Clinic of Angels”, a site to get monies, if you are in need.http://www.clinicofangels.org/ and click on the Financial application form on the left of the screen.
Help With Medicine Costs
http://www.needymeds.org/
Fundraiser Help
Providing Patients Access to the Medicines They Need
http://www.bridgestoaccess.com/
Following Info Provided by Shanna Yule, thank you Shanna for putting this together for us!
Bridges To Access
http://www.bridgestoaccess.com/
The GSK program providing low cost or no cost medications for non-medicare patients or for people who do not have prescription coverage. It is a great program for Malarone and Mepron.
ClinicalTrials.gov
ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. Use the search tool, there seem to be a few trials recruiting for Lyme Disease patients.
http://clinicaltrials.gov
Clinic Of Angels
The Clinic of Angels is a 501(c) 3 non-profit organization founded in 2005 by Michael Cichon MD. Dr. Cichon, a board certified Internal Medicine and Infectious Disease physician has practiced in the Tampa Bay area for over 30 years. His purpose in starting this organization was to help chronically ill patients by providing financial resources to help in their medical care.
http://www.clinicofangels.org/
http://www.clinicofangels.org/Clinic%20of%20Angels%20Application%20for%20Services%20with%20income%20chart%20New%20(2).pdf (application form)
Co-Payment Programs
Co-pay programs provide financial assistance for certain health care costs to patients who qualify financially and medically.
Discount for Condensed Cowden Support Program via Nutramedix -
http://www.pparx.org/en/prescription_assistance_programs/co-payment_programs
http://www.nutramedix.com/company.asp
http://www.nutramedix.com/contact-us.asp (phone numbers)
The Nutramedix company more than a year ago offered for a while, free Condensed Cowden Support Programs (CCSP) to select Lyme patients. Nutramedix no longer offers that but if someone with severe Lyme disease &/or co-infections wants to go on the CCSP but can’t afford it, they can contact Nutramedix to discuss their financial situation & request a discount based on financial need.
Discount Drug Card Programs
http://www.pparx.org/en/prescription_assistance_programs/discount_cards
A list of many state and other “savings card” programs to help with cost of medications.
GSK-Access
http://www.gsk-access.com/index.html (home page)
http://www.gsk-access.com/medicines/medicine-list.html (list of medicines)
GSK Access is a GlaxoSmithKline patient assistance program. It provides GSK prescription medicines—at no charge—to qualified patients who are enrolled in a Medicare Part D Prescription Drug Plan.
L.E.A.P. – Financial Assistance Program
http://www.leaparizona.com/financialassistance.htm
There is very little financial assistance available for children and adults suffering with Lyme disease. We at L.E.A.P. are attempting to raise funds for this very purpose for patients in Arizona and across the United States. Our program consists of a financial assistance application which is confidentially reviewed and verified during the approval process. When patients are approved for assistance, all funds disbursed on their behalf are sent directly to their providers/creditors after insurance payments and balance verification. We make sure that grants and donors’ contributions are used appropriately.
In addition, L.E.A.P. has a partnership with Amazon.com. Amazon makes a donation to L.E.A.P each and every time a purchase is made using this link: http://www.amazon.com/?&tag=lymeeducation-20&camp=15345&creative=331689&linkCode=ur1&adid=06609TZGXCZ7F7YH5GDM& Pass this on!
Lyme Aid 4Kids
http://www.needymeds.org/co_pay_program.taf?_function=detail&program_id=268 (overview/contact info)
http://www.LymeDiseaseAssociation.org/index.php?option=com_content&view=article&id=592&Itemid=38 (application)
The LymeAid 4 Kids (LA4K) fund began in 2004 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently.
Help With Pet Bills
http://www.rescuinganimalsinneed.org/financial_help.htm
Modest Needs
http://www.modestneeds.org/explore/
http://www.modestneeds.org/intro/
Modest Needs offers three main types of grants: Self-Sufficiency Grants, Back-to-Work Grants, and Independent Living Grants. The grants we offer at Modest Needs come with no strings attached and do not ever have to be repaid.
Modest Needs’ grant programs are designed PRIMARILY to assist individuals and families who generally are able to pay their monthly bills with no help from anyone, who don’t qualify for conventional types of social or charitable assistance, and who are facing a financial crisis because they’ve encountered a single, unexpected expense they just can’t afford on their own.
Of course, we also offer grants that are designed to assist people who are in the process of returning to work, persons who need help to afford accessibility equipment, and small non-profit organizations. But, in general, Modest Needs just does not have the resources to assist individuals or families who are homeless, have no regular income of their own, or need / receive ongoing help to afford the basics.
Partnership for Prescription Assistance
http://www.pparx.org/
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that’s right for you, free of charge. Remember,you will never be asked for money by a PPA Call Center representative, or on this Web site.
Needy Meds
http://www.needymeds.org/resourcepages/lyme%20disease.htm
This is a Patient Assistance Programs (PAPs). Programs offered by pharmaceutical companies to help those most in need gain access to their medications at no or low cost. Each program has varying financial and insurance guidelines – when in doubt, call the program. To find the specific PAP information for a specific drug click on the list (on web page). You will then be taken to a listing of all the programs available for that medication.
http://www.needymeds.org/free_clinics.taf
This webpage, also part of Needy Meds, is specifically for those without insurance or unable to pay for a visit with a physician, NeedyMeds has compiled a nationwide list of free, low cost, and sliding scale clinics. *Granted these are not LLMD’s specifically, probably mostly Family Practitioners, Infectious Disease, etc, basically doctors that have general knowledge about Lyme.
Patient Advocate Foundation (Co-Pay Relief)
http://www.copays.org/
The Patient Advocate Foundation (PAF) Co-Pay Relief Program (CPR) currently provides direct financial support to insured patients, including Medicare Part D beneficiaries, who must financially and medically qualify to access pharmaceutical co-payment assistance. The program offers personal service to all patients through the use of call counselors; personally guiding patients through the enrollment process.
Prescription Hope
http://www.prescriptionhope.com/
A program helping people get prescriptions at a much lower price. So if you are taking antibiotics, iv’s, etc, they could be a great resource to look into. From their website “We assist individuals who need to take prescription medications, yet lack the income to afford the monthly expense. Since our founding in 2001 we have assisted thousands of uninsured and underinsured individuals throughout the United States in obtaining prescriptions directly from the manufacturer.”
RxAssist
http://www.rxassist.org/
Information about free medications. Find information about free and low cost medicine programs and other ways to manage your medication costs. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs.
Rx Hope
https://www.rxhope.com/
RxHope is exactly what its name implies…a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help.
Wish Upon A Hero
http://www.wishuponahero.com
Wish Upon A Hero is a website that brings together people to help grant wishes big and small. No wish is too large, no hero is too small.
Sponsor a child for their birthday
https://www.facebook.com/pages/Sponsor-a-child-for-their-birthday/345163365521900
Financial Assistance for Lyme Disease Patients
http://lyme.kaiserpapers.org/financial-assistance.html

Go Fund Me is another great way to raise funds for yourself and let people see where their donations are going.
http://www.gofundme.com/

You could hold an online Auction of handmade items, donated items, or items of your own that you are selling on 32Auctions.
http://www.32auctions.com/

Ways to get help if you live in the USA
http://www.usa.gov/citizen/topics/family/help-for-difficult-financial-times.shtml

http://www.benefits.gov/

UNDERSTANDING TESTING METHODS
http://www.igenex.com/labtest.htm




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